9Isaiah’s 100-watt smile melts a lot of hearts and his sweet demeanor earns him a lot of hugs. Nowadays, Isaiah comes to Heartspring Pediatric Services four days a week for multiple therapies, and the road to accessing those services has been nothing short of an emotional roller coaster.“Prior to Heartspring, we had no idea what Isaiah’s future may hold,” Isaiah’s mom, Melissa, said. “Honestly, we had little hope.”Isaiah was diagnosed with a rare genetic disorder at an early age. The diagnosis triggered additional diagnoses of autism, infantile scoliosis and a Chiari malformation. Infantile scoliosis is a curved spine, diagnosed between birth and three years of age, while a Chiari malformation (CM) is a structural defect in the cerebellum—the part of the brain that controls balance.At only one year old, Isaiah had to endure brain surgery, and has not been able to develop speech or meet any typical milestones in growth or development. The family came to Heartspring after hearing about the organization online and through word-of-mouth.“Heartspring has a great reputation of helping kids with all types of special needs and providing financial help to the families that absolutely could not receive services otherwise,” Melissa said.This year, Isaiah is serving as one of PedalFest 2014’s spokeschildren. PedalFest is a one-day bike ride in Wichita that raises money for the FINDING HOPE.“YOU ARE YOUR CHILD’S BEST ADVOCATE AND YOU WILL FIND HELP IF YOU CONTINUE TO DO EVERYTHING YOU CAN TO ACCESS IT. It isn’t always easy, but it will always be worth it.”MELISSA ISAIAH’S MOM<<FINDING HOPE, continued on page 15 (Top) Isaiah smiles as he begins therapy in the Applied Behavior Analysis (ABA) classroom. Isaiah visits Heartspring several times a week to receive this therapy. (Above) Isaiah works on one of his therapy goals. He uses letters to fill in the blanks to spell out words with his ABA tutor.Cover photo by Tobie Andrews Photography
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